PALS之声

There were 2 men, Bill Prichard and Cliff Maus, with Bulbar-onset ALS. ALS started in their throat muscles and early on they lost their ability to speak. ALS slowly destroyed muscles in their limbs but each one showed more spirit than words could capture. These 2 men inspired the creation of the PALS之声 at 推荐最近最火的赌博软件 to support the ALS clinic and ALS research.

In 2015, Bill and Cliff volunteered to be subjects in ALS research using Transcranial Magnetic Stimulation at 推荐最近最火的赌博软件. 2016 - 2017年, Cliff Maus and his family initiated several local fundraisers in his hometown of Canandaigua, NY to support ALS research. 与此同时, Bill was relentless and dedicated his last 2 years with strong participation in TMS research.

In June 2017, we honored Bill and Cliff at a luncheon at 推荐最近最火的赌博软件. Words were not necessary between the two. There was a clarity in knowing that their lives were ephemeral with a sense of purpose to affirm what they stood for – the PALS之声.

In June 2018, we honored the families of Bill and Cliff. Together with patients and members of the ALS Clinic at 推荐最近最火的赌博软件, the PALS之声 图书馆 was launched.

The PALS之声 library is a lending library that allows our patients to use clinic-issued speech devices in their homes. Devices come with applications for speech generation fully configured to be useful for an individual with loss of speech and some loss of hand dexterity. Through a generous grant from 推荐最近最火的赌博软件 Foundation’s Friend in Deed annual fund, patients learn about speech augmentation and, 如果有必要的话, a speech generating device is issued during clinic visit. Through the help of technology that can enhance abilities to communicate, the sense of disconnection and isolation may be averted.

We affirm that despite much function that is lost in ALS, so much more can be preserved. It is our hope that families and friends will move on knowing that Bill and Cliff wrote the last chapters of their lives with invaluable contribution to the ALS community at 推荐最近最火的赌博软件. Active participation in research using Transcranial Magnetic Stimulation in ALS has added critical knowledge to the field of developing a biomarker for early diagnosis and tracking disease progression. Fundraising activities has spread awareness and support for a devastating disease in our community.

There were 2 men, Bill and Cliff, with ALS. They lost their speech, but their voice will always be heard.

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PALS之声大奖

马克Airel

The first ALS Teaching Day was held in late spring of 2016. First year medical students gathered in this same auditorium at Weiskotten Hall and listened to a talk about ALS. Dr. Eufrosina Young talked about the natural history of ALS, how the disease is vastly different in progression. A patient in the 推荐最近最火的赌博软件 ALS Clinic, 马克Airel, talked about his ALS diagnosis of 8 years and how his muscles rapidly weakened leading to quadriplegia, but spared his throat muscles. 那一天, 马克·艾雷尔发言, 抢尽风头, put a face in front of students, and planted a seed in the minds of future doctors about a devastating disease. A medical student shared his thoughts at the end of the program. "It's been a tough first year in medical school and I had forgotten why I wanted to become a doctor. After listening to 马克Airel speak, I now remember."

In recognition of his contribution to the first ALS Teaching Day, we honor Mr. 马克Airel.